I have been blessed to have been offered several different kinds of healing sessions over the past month. Some of you that have offered, I have yet to contact (but I will). In combination with all of my doctor appointments, the first week or two I was so excited to try all of the different modalities offered by different practioners that I wore myself out. So now my goal is to have no more than one treatment session per day. There is such a thing as "too much of a good thing."
As thank you to the wonderful people who have volunteered their amazing services, I will feature each person along with their contact information in case any of you paying customers out there are interested.
Maury Brooks, qigong energy healer and movement instructor, emphasizes that the movement of energy does not require touch....or even proximity. That said, he kindly came over last night to offer me a treatment. He placed three purple ballons in various locations on my body, held by the weight of a blanket. Then he incorporated deep breathing, sound (which he played from his laptop) and energy work. The ballons amplify the vibration of the sound. My only job was to lay still and breathe.
At one point during the session he asks me "do you taste that?" as he stopped to get a drink of water. While I had recently finished one of my delicious bitter lettuce juices (please sense the sarcasm here) so the taste in my mouth wasn't exactly pleasant to begin with, I did get what he was saying. There was a slight metallic taste in the back of my mouth. How'd he know? Hmmm. Seems like magic to me.
Maury generously donated this two hour session to me. I definitely felt more energized after the session. If you are interested in contacting him for more information, check out his webpage http://www.qigong-healing.com/ or call him at 988.8951
Infomercial over.
Wednesday, June 30, 2010
Tuesday, June 29, 2010
John Hopkins Update
AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY.
Cancer Update from Johns Hopkins:
1. Every person has cancer cells in the body. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size.
2. Cancer cells occur between 6 to more than 10 times in a person's lifetime.
3. When the person's immune system is strong the cancer cells will be destroyed and prevented from multiplying and forming tumors.
4. When a person has cancer it indicates the person has nutritional deficiencies. These could be due to genetic,but also to environmental, food and lifestyle factors.
5. To overcome the multiple nutritional deficiencies, changing diet to eat more adequately and healthy, 4-5 times/day and by including supplements will strengthen the immune system.
6. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone marrow, gastrointestinal tract etc, and can cause organ damage, like liver, kidneys, heart, lungs etc.
7. Radiation while destroying cancer cells also burns, scars and damages healthy cells, tissues and organs.
8. Initial treatment with chemotherapy and radiation will often reduce tumor size. However prolonged use of
chemotherapy and radiation do not result in more tumor destruction.
9. When the body has too much toxic burden from chemotherapy and radiation the immune system is either
compromised or destroyed, hence the person can succumb to various kinds of infections and complications.
10. Chemotherapy and radiation can cause cancer cells to mutate and become resistant and difficult to destroy. Surgery can also cause cancer cells to spread to other sites.
11. An effective way to battle cancer is to starve the cancer cells by not feeding it with the foods it needs to multiply.
*CANCER CELLS FEED ON:
a. Sugar substitutes like NutraSweet, Equal, Spoonful, etc are made with Aspartame and it is harmful. A better natural substitute would be Manuka honey or molasses, but only in very small amounts. Table salt has a chemical added to make it white in color Better alternative is Bragg's aminos or sea salt.
b. Milk causes the body to produce mucus, especially in the gastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and substituting with unsweetened soy milk cancer cells are being starved.
c. Cancer cells thrive in an acid environment. A meat-based diet is acidic and it is best to eat fish, and a little other meat, like chicken. Meat also contains livestock antibiotics, growth hormones and parasites, which are all harmful, especially to people with cancer.
d. A diet made of 80% fresh vegetables and juice, whole grains, seeds, nuts and a little fruits help put the body into an alkaline environment. About 20% can be from cooked food including beans. Fresh vegetable juices provide live enzymes that are easily absorbed and reach down to cellular levels within 15 minutes to nourish and enhance growth of healthy cells. To obtain live enzymes for building healthy cells try and drink fresh vegetable juice (most vegetables including be an sprouts) and eat some raw vegetables 2 or 3 times a day. Enzymes are destroyed at temperatures of 104 degrees F (40 degrees C)..
e. Avoid coffee, tea, and chocolate, which have high caffeine Green tea is a better alternative e and has cancer fighting properties. Water-best to drink purified water, or filtered, to avoid known toxins and heavy metals in tap water. Distilled water is acidic, avoid it.
12. Meat protein is difficult to digest and requires a lot of digestive enzymes. Undigested meat remaining in the intestines becomes putrefied and leads to more toxic buildup.
13. Cancer cell walls have a tough protein covering. By refraining from or eating less meat it frees more enzymes to attack the protein walls of cancer cells and allows the body's killer cells to destroy the cancer cells.
14. Some supplements build up the immune system (IP6, Flor-ssence, Essiac, anti-oxidants, vitamins, minerals, EFAs etc.) to enable the bodies own killer cells to destroy cancer cells.. Other supplements like vitamin E are known to cause apoptosis, or programmed cell death, the body's normal method of disposing of damaged, unwanted, or unneeded cells.
15. Cancer is a disease of the mind, body, and spirit. A proactive and positive spirit will help the cancer warrior be a survivor. Anger, un-forgiveness and bitterness put the body into a stressful and acidic environment. Learn to have a loving and forgiving spirit. Learn to relax and enjoy life.
16. Cancer cells cannot thrive in an oxygenated environment. Exercising daily, and deep breathing help to
get more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer
cells.
1. No plastic containers in micro.
2. No water bottles in freezer.
3. No plastic wrap in microwave..
Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter Reed Army Medical Center as well. Dioxin chemicals cause cancer, especially breast cancer. Dioxins are highly poisonous to the cells of our bodies. Don't freeze your plastic bottles with water in them as this releases dioxins from the plastic. Recently, Dr Edward Fujimoto, Wellness Program Manager at Castle Hospital , was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us. He said that we should not be heating our food in the microwave using plastic containers. This especially applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead, he recommends using glass, such as Corning Ware, Pyrex or ceramic containers for heating food. You get the same results, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper isn't bad but you don't know what is in the paper. It's just safer to use tempered glass, Corning Ware, etc. He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper The dioxin problem is one of the reasons.
Please share this with your whole email list.........................
Also, he pointed out that plastic wrap, such as Saran, is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food. Cover food with a paper towel instead.
Cancer Update from Johns Hopkins:
1. Every person has cancer cells in the body. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size.
2. Cancer cells occur between 6 to more than 10 times in a person's lifetime.
3. When the person's immune system is strong the cancer cells will be destroyed and prevented from multiplying and forming tumors.
4. When a person has cancer it indicates the person has nutritional deficiencies. These could be due to genetic,but also to environmental, food and lifestyle factors.
5. To overcome the multiple nutritional deficiencies, changing diet to eat more adequately and healthy, 4-5 times/day and by including supplements will strengthen the immune system.
6. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone marrow, gastrointestinal tract etc, and can cause organ damage, like liver, kidneys, heart, lungs etc.
7. Radiation while destroying cancer cells also burns, scars and damages healthy cells, tissues and organs.
8. Initial treatment with chemotherapy and radiation will often reduce tumor size. However prolonged use of
chemotherapy and radiation do not result in more tumor destruction.
9. When the body has too much toxic burden from chemotherapy and radiation the immune system is either
compromised or destroyed, hence the person can succumb to various kinds of infections and complications.
10. Chemotherapy and radiation can cause cancer cells to mutate and become resistant and difficult to destroy. Surgery can also cause cancer cells to spread to other sites.
11. An effective way to battle cancer is to starve the cancer cells by not feeding it with the foods it needs to multiply.
*CANCER CELLS FEED ON:
a. Sugar substitutes like NutraSweet, Equal, Spoonful, etc are made with Aspartame and it is harmful. A better natural substitute would be Manuka honey or molasses, but only in very small amounts. Table salt has a chemical added to make it white in color Better alternative is Bragg's aminos or sea salt.
b. Milk causes the body to produce mucus, especially in the gastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and substituting with unsweetened soy milk cancer cells are being starved.
c. Cancer cells thrive in an acid environment. A meat-based diet is acidic and it is best to eat fish, and a little other meat, like chicken. Meat also contains livestock antibiotics, growth hormones and parasites, which are all harmful, especially to people with cancer.
d. A diet made of 80% fresh vegetables and juice, whole grains, seeds, nuts and a little fruits help put the body into an alkaline environment. About 20% can be from cooked food including beans. Fresh vegetable juices provide live enzymes that are easily absorbed and reach down to cellular levels within 15 minutes to nourish and enhance growth of healthy cells. To obtain live enzymes for building healthy cells try and drink fresh vegetable juice (most vegetables including be an sprouts) and eat some raw vegetables 2 or 3 times a day. Enzymes are destroyed at temperatures of 104 degrees F (40 degrees C)..
e. Avoid coffee, tea, and chocolate, which have high caffeine Green tea is a better alternative e and has cancer fighting properties. Water-best to drink purified water, or filtered, to avoid known toxins and heavy metals in tap water. Distilled water is acidic, avoid it.
12. Meat protein is difficult to digest and requires a lot of digestive enzymes. Undigested meat remaining in the intestines becomes putrefied and leads to more toxic buildup.
13. Cancer cell walls have a tough protein covering. By refraining from or eating less meat it frees more enzymes to attack the protein walls of cancer cells and allows the body's killer cells to destroy the cancer cells.
14. Some supplements build up the immune system (IP6, Flor-ssence, Essiac, anti-oxidants, vitamins, minerals, EFAs etc.) to enable the bodies own killer cells to destroy cancer cells.. Other supplements like vitamin E are known to cause apoptosis, or programmed cell death, the body's normal method of disposing of damaged, unwanted, or unneeded cells.
15. Cancer is a disease of the mind, body, and spirit. A proactive and positive spirit will help the cancer warrior be a survivor. Anger, un-forgiveness and bitterness put the body into a stressful and acidic environment. Learn to have a loving and forgiving spirit. Learn to relax and enjoy life.
16. Cancer cells cannot thrive in an oxygenated environment. Exercising daily, and deep breathing help to
get more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer
cells.
1. No plastic containers in micro.
2. No water bottles in freezer.
3. No plastic wrap in microwave..
Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter Reed Army Medical Center as well. Dioxin chemicals cause cancer, especially breast cancer. Dioxins are highly poisonous to the cells of our bodies. Don't freeze your plastic bottles with water in them as this releases dioxins from the plastic. Recently, Dr Edward Fujimoto, Wellness Program Manager at Castle Hospital , was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us. He said that we should not be heating our food in the microwave using plastic containers. This especially applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead, he recommends using glass, such as Corning Ware, Pyrex or ceramic containers for heating food. You get the same results, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper isn't bad but you don't know what is in the paper. It's just safer to use tempered glass, Corning Ware, etc. He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper The dioxin problem is one of the reasons.
Please share this with your whole email list.........................
Also, he pointed out that plastic wrap, such as Saran, is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food. Cover food with a paper towel instead.
Monday, June 28, 2010
The Challenge of Asking
I did not ask for this disease or this situation.
I did ask the Universe for the opportunity to repair certain relationships in my life.
The Universe is a fickle friend, I suppose. I got both things I asked and didn't ask for.
I have on my hands a literal fight for my life.
The astrologers say the verdict is out, whether I'll make it or not.
I'm personally determined to live.
While I conserve my energy for endless doctor appointments and self healing, I am forced into a position where I have to ask. This is a new place for me. I have always been fiercely independant and self-reliant.
Now I have to ask for help with nearly every activity that I once took for granted.
It is not an easy place for me to be, but I suppose it too is a good lesson.
From the bottom of my heart, I want to thank you all for your ongoing love and support. I want to thank you for not minding me asking for help. I want to thank you for everything.
I did ask the Universe for the opportunity to repair certain relationships in my life.
The Universe is a fickle friend, I suppose. I got both things I asked and didn't ask for.
I have on my hands a literal fight for my life.
The astrologers say the verdict is out, whether I'll make it or not.
I'm personally determined to live.
While I conserve my energy for endless doctor appointments and self healing, I am forced into a position where I have to ask. This is a new place for me. I have always been fiercely independant and self-reliant.
Now I have to ask for help with nearly every activity that I once took for granted.
It is not an easy place for me to be, but I suppose it too is a good lesson.
From the bottom of my heart, I want to thank you all for your ongoing love and support. I want to thank you for not minding me asking for help. I want to thank you for everything.
Sunday, June 27, 2010
The Search For Housing Begins....my place expires August 10
My donated housing situation, as many of you know, has been a blessing beyond belief. Lauren Hunt and her husband Brad have been absolutely fantastic and any ideas on how to thank them profusely and profoundly would be appreciated.
That said, I have to move out of this lovely refuge by August 10 at the latest. Perhaps the weekend before makes more sense logistically for anyone willing to help me move?
What this means: I need a new non-toxic place to live by August 10. Ideally, the place would be similar to this one: quiet, clean, centrally located, washer/dryer, dishwashter, warm in the winter, bathtub, etc. etc. Even more ideal would be a low or no rent situation, since I have no income at this time or in the foreseeable future. All things, of course, are negotiable.
So, please, keep your eyes, ears and hearts open and let me know if you hear of anything or have any ideas. Thank you and blessings. You can email me directly at fieldofcosmos@gmail.com
COMPUTER ISSUES (again!)
Someone in their efforts to help me "clean up" my computer discarded (as far as I can tell) my Microsoft Office suite 2003 including my word and excel programs. Somewhere in the depths of my storage unit that only my Aunt Judy understands are the disks to upload the program. Judy is on vacation until mid-July. This is extremely unfortunate as I was just about to sit down and finalize my 2009 tax stuff for my accountant (running a bit late here) AND I was going to enter all of my bloodwork into a spreadsheet so that I might be able to really track the ups (hurrah!) and downs (dang em!) of my blood counts. If you have skills in computers or those Microsoft Office files or at the very least data entry skills (ie of bloodwork), and would be willing to help out, please let me know asap. fieldofcosmos@gmail.com
PS. The magnetic mattress is 2 outta 3 so far. For a person who has not slept the whole night through since April, 2 nights of uninterrupted sleep has been a huge blessing. The night that I didn't sleep well? I had, um, uncomfortable body issues of the GI nature combined with the full moon. Will see what happens tonight.....
That said, I have to move out of this lovely refuge by August 10 at the latest. Perhaps the weekend before makes more sense logistically for anyone willing to help me move?
What this means: I need a new non-toxic place to live by August 10. Ideally, the place would be similar to this one: quiet, clean, centrally located, washer/dryer, dishwashter, warm in the winter, bathtub, etc. etc. Even more ideal would be a low or no rent situation, since I have no income at this time or in the foreseeable future. All things, of course, are negotiable.
So, please, keep your eyes, ears and hearts open and let me know if you hear of anything or have any ideas. Thank you and blessings. You can email me directly at fieldofcosmos@gmail.com
COMPUTER ISSUES (again!)
Someone in their efforts to help me "clean up" my computer discarded (as far as I can tell) my Microsoft Office suite 2003 including my word and excel programs. Somewhere in the depths of my storage unit that only my Aunt Judy understands are the disks to upload the program. Judy is on vacation until mid-July. This is extremely unfortunate as I was just about to sit down and finalize my 2009 tax stuff for my accountant (running a bit late here) AND I was going to enter all of my bloodwork into a spreadsheet so that I might be able to really track the ups (hurrah!) and downs (dang em!) of my blood counts. If you have skills in computers or those Microsoft Office files or at the very least data entry skills (ie of bloodwork), and would be willing to help out, please let me know asap. fieldofcosmos@gmail.com
PS. The magnetic mattress is 2 outta 3 so far. For a person who has not slept the whole night through since April, 2 nights of uninterrupted sleep has been a huge blessing. The night that I didn't sleep well? I had, um, uncomfortable body issues of the GI nature combined with the full moon. Will see what happens tonight.....
Friday, June 25, 2010
Blood Update & the Magical Mattress Pad
Wednesday (after both blood and platelet transfusion on Tuesday):
platelets 43 wbc 1.2 rbc 3.77
Friday
platelets 23 wbc 1.3 rbc 3.85!!!! (this is great! rbc & wbc on the rise!)
What this means: Platelet transfusion on Sunday.
I still have my "good" days and my "bad" days. Today I'm a bit better. Wednesday after the transfusions was a bit rough.
In the meantime, I've purchased a very fancy smancy magnetic mattress. It's amazing the things you learn from people. I've heard about several miraculous results. So why not? From their website:
Why do you need magnetism?
Science has established beyond all doubt that all living cells are electromagnetic by nature. There are only two natural sources of magnetism available to you: your brain and the Earth. Eighty percent of the human brain is composed of Astrocyte cells. These cells have the capacity to generate electricity and produce a pulsed, electro-magnetic field with efficiency. The Earth is your other source of magnetism. It provides a supportive, steady state, magnetic field, which your body draws on to enhance molecular reactions. These two magnetic fields work together to accomplish magnetic resonance, which dramatically enhances the chemical reactions of the body. 4
Magnetic Resonance
Magnetic resonance occurs when the brain’s pulsed magnetic frequency matches the frequencies of various tissues and organs. 4 This is accomplished in 90-100 minute cycles, mostly while we sleep. Resonance will usually maintain a given frequency for a few seconds up to a few minutes. This range depends on the urgency and degree of repair or restoration needed. Magnetic resonance is desirable because it helps repair damage done to cells, makes enzymes, and enhances immunity. 4,5
Why do we need to augment naturally occurring magnetism?
There are two major factors adversely affecting magnetic resonance. First, a gradual cyclic decline in our geomagnetic field has left the atoms of our bodies in a lower energy state, making it more difficult for magnetic resonance to occur. 6 It is estimated that we have lost 80% of our magnetic field in the last 4000 years. 7,8,9,10
Second, in this technological age, the outside electromagnetic frequencies your body is exposed to are higher and stronger than ever before. As a result, these frequencies override the vital brain function of magnetic resonance with your organs and tissues. 11 This interference leaves you in a fatigued state that, over an extended period, can contribute to the development of chronic ailments. This development is due, in part, to a lack of restorative resonance. 11
How can you restore the magnetic field your body needs?
These deficiency states can be overcome by exposing your body to an enhanced steady state, magnetic field (much like the Earth’s) during sleep. In North America, the magnetic field must be pure negative and completely pass through the body in order to complement the negative field of the Northern Hemisphere. 11 By using our patented Magnetico Sleep Pad, you ensure your body will receive the right direction of magnetic energy, which is essential for organ and tissue restoration.
Study Validates Increased Detoxification
A clinical pilot study of thirteen subjects was conducted by an independent private physician. The study supports the increased detoxification capability associated with the Magnetico Sleep Pad, Super Model (20 gauss). This involved three urine challenge tests, all analyzed by an independent lab.
1.Baseline levels, taken three days before any treatment.
2.After one night on the Magnetico Sleep Pad.
3.After the second night on the Magnetico Sleep Pad plus taking one 500 mg DMSA capsule.
Results:
Excretion levels of toxic metals after one night on the Magnetico Sleep Pad compared to Baseline Levels:
Weighted Averages: Arsenic -31.66%
Lead -22.18%
Mercury -28%
Nickel -6.6%
Tin -10.44%
Excretion levels of toxic metals after a second night on a Magnetico Sleep Pad and 500 mg of DMSA taken at bedtime, compared to Baseline Levels:
Weighted Averages: Arsenic -16.7%
Lead -80.58%
Mercury -45.6%
Nickel -4.15%
Tin -57.72%
Think about it, what a simple way to assist in good health.... It’s as easy as going to bed! Sleep is all about restoring, repairing, rebuilding, healing and in children-growing. Those magnets just keep going and going, helping you on your way to health every single night! Your satisfaction is guaranteed.
platelets 43 wbc 1.2 rbc 3.77
Friday
platelets 23 wbc 1.3 rbc 3.85!!!! (this is great! rbc & wbc on the rise!)
What this means: Platelet transfusion on Sunday.
I still have my "good" days and my "bad" days. Today I'm a bit better. Wednesday after the transfusions was a bit rough.
In the meantime, I've purchased a very fancy smancy magnetic mattress. It's amazing the things you learn from people. I've heard about several miraculous results. So why not? From their website:
Why do you need magnetism?
Science has established beyond all doubt that all living cells are electromagnetic by nature. There are only two natural sources of magnetism available to you: your brain and the Earth. Eighty percent of the human brain is composed of Astrocyte cells. These cells have the capacity to generate electricity and produce a pulsed, electro-magnetic field with efficiency. The Earth is your other source of magnetism. It provides a supportive, steady state, magnetic field, which your body draws on to enhance molecular reactions. These two magnetic fields work together to accomplish magnetic resonance, which dramatically enhances the chemical reactions of the body. 4
Magnetic Resonance
Magnetic resonance occurs when the brain’s pulsed magnetic frequency matches the frequencies of various tissues and organs. 4 This is accomplished in 90-100 minute cycles, mostly while we sleep. Resonance will usually maintain a given frequency for a few seconds up to a few minutes. This range depends on the urgency and degree of repair or restoration needed. Magnetic resonance is desirable because it helps repair damage done to cells, makes enzymes, and enhances immunity. 4,5
Why do we need to augment naturally occurring magnetism?
There are two major factors adversely affecting magnetic resonance. First, a gradual cyclic decline in our geomagnetic field has left the atoms of our bodies in a lower energy state, making it more difficult for magnetic resonance to occur. 6 It is estimated that we have lost 80% of our magnetic field in the last 4000 years. 7,8,9,10
Second, in this technological age, the outside electromagnetic frequencies your body is exposed to are higher and stronger than ever before. As a result, these frequencies override the vital brain function of magnetic resonance with your organs and tissues. 11 This interference leaves you in a fatigued state that, over an extended period, can contribute to the development of chronic ailments. This development is due, in part, to a lack of restorative resonance. 11
How can you restore the magnetic field your body needs?
These deficiency states can be overcome by exposing your body to an enhanced steady state, magnetic field (much like the Earth’s) during sleep. In North America, the magnetic field must be pure negative and completely pass through the body in order to complement the negative field of the Northern Hemisphere. 11 By using our patented Magnetico Sleep Pad, you ensure your body will receive the right direction of magnetic energy, which is essential for organ and tissue restoration.
Study Validates Increased Detoxification
A clinical pilot study of thirteen subjects was conducted by an independent private physician. The study supports the increased detoxification capability associated with the Magnetico Sleep Pad, Super Model (20 gauss). This involved three urine challenge tests, all analyzed by an independent lab.
1.Baseline levels, taken three days before any treatment.
2.After one night on the Magnetico Sleep Pad.
3.After the second night on the Magnetico Sleep Pad plus taking one 500 mg DMSA capsule.
Results:
Excretion levels of toxic metals after one night on the Magnetico Sleep Pad compared to Baseline Levels:
Weighted Averages: Arsenic -31.66%
Lead -22.18%
Mercury -28%
Nickel -6.6%
Tin -10.44%
Excretion levels of toxic metals after a second night on a Magnetico Sleep Pad and 500 mg of DMSA taken at bedtime, compared to Baseline Levels:
Weighted Averages: Arsenic -16.7%
Lead -80.58%
Mercury -45.6%
Nickel -4.15%
Tin -57.72%
Think about it, what a simple way to assist in good health.... It’s as easy as going to bed! Sleep is all about restoring, repairing, rebuilding, healing and in children-growing. Those magnets just keep going and going, helping you on your way to health every single night! Your satisfaction is guaranteed.
Tuesday, June 22, 2010
Another email from Marla
Hello Karen:
I haven't had my CBC taken in over 2 years now. But prior to stopping my CBCs all my numbers, I think, are documented on my website. During that time, I also did two full years of phlebotomy to get my iron overload down to normal. During those two years of full phlebotomies, my hgb remained in the normal ranges (even as high as 15s at one point). As far as I know my counts are normal, except my plts never went higher than 118K, but remained steady there for years.
I no longer juice, except if I get sick or something, which isn't often. My diet is a lot different now than during recovery. But still mostly organic and still not much junk food. I say that because I do on occasion have some dessert of cookies or a pic of cake or muffin. I think I'm more of an herbal tea drinker now, than a juice drinker. . .
As far as juicing regime, I would probably make changes. I think the list you got was already modified from during my recovery phase. I see what you listed was in Jan 2002 and my last blood transfusion was in 2001. So this was definitely a phase where I was modifying my regime. I "don't" recommend one cup of orange juice daily and didn't do that in the beginning as well. I think that came about as I was learning about vit C from Dr. Rath. I since come to believe that it may be too much to have 1 full cup of orange juice every single day. If you look at the May 2002 example menu, you'll see that I changed more and there is no orange juice there. The other juices I drank during recovery were a combo of carrot, romaine and celery or cucumber, sometimes with half an apple. I did not juice beets regularly. Again, that must have been what I was doing during that phase of my tweeting my diet to try to tease out more results. You may also notice that I started to add meat back in by May and that's when I started to see more improvements especially with my reds. You may notice that by April 2003, I has stopped juicing and had added more meat products. To get a better understanding of why I decided upon the changes I did, you can check out the book list that I had read during that time.
I tried a lot of things especially in the beginning. so if you look at the page of my treatment, there is a section where I write about what I "eliminated." This might help you get an idea of what else I tried and what and why I stopped them. But to re-iterate, all my juices in the beginning consisted of carrot, romaine, celery or cucumber, and half an apple or so and barley green mixed in. I would basically put a measuring cup under the juicer and see that it filled at least the full cup. In the beginning I followed Dr.Lorraine Day's protocal of 8 glasses of juice a day and I even went beyond to about 13! But I later cut back to 4 a day, which I think I more practical (each drink being 2 cups worth--i.e. 2 cups 4xday). Looking back in retrospect, I can see how it's confusing. There was so much that I may have taken some info for granted! Especially the juice combo in the early phase. By the time I had started my website, I was pretty much transfusion free and just trying to document it for anyone interested. I did not list my counts while transfusion dependent because I didn't feel those mattered because the blood wasn't mine, but transfused blood.
Oh, and one last thing, the lemon water. . . I did do that for a couple years, but later became sensitive to lemons! So I don't recommend it every single day like I did it. My sensitivity came in "hives." I have since stopped it, and find that I can only take lemon water for about two weeks when the hives start to come back. So easy with the lemons. . .
Okay, I hope that's more clear! If not, let me know.
Take care!
Marla
I haven't had my CBC taken in over 2 years now. But prior to stopping my CBCs all my numbers, I think, are documented on my website. During that time, I also did two full years of phlebotomy to get my iron overload down to normal. During those two years of full phlebotomies, my hgb remained in the normal ranges (even as high as 15s at one point). As far as I know my counts are normal, except my plts never went higher than 118K, but remained steady there for years.
I no longer juice, except if I get sick or something, which isn't often. My diet is a lot different now than during recovery. But still mostly organic and still not much junk food. I say that because I do on occasion have some dessert of cookies or a pic of cake or muffin. I think I'm more of an herbal tea drinker now, than a juice drinker. . .
As far as juicing regime, I would probably make changes. I think the list you got was already modified from during my recovery phase. I see what you listed was in Jan 2002 and my last blood transfusion was in 2001. So this was definitely a phase where I was modifying my regime. I "don't" recommend one cup of orange juice daily and didn't do that in the beginning as well. I think that came about as I was learning about vit C from Dr. Rath. I since come to believe that it may be too much to have 1 full cup of orange juice every single day. If you look at the May 2002 example menu, you'll see that I changed more and there is no orange juice there. The other juices I drank during recovery were a combo of carrot, romaine and celery or cucumber, sometimes with half an apple. I did not juice beets regularly. Again, that must have been what I was doing during that phase of my tweeting my diet to try to tease out more results. You may also notice that I started to add meat back in by May and that's when I started to see more improvements especially with my reds. You may notice that by April 2003, I has stopped juicing and had added more meat products. To get a better understanding of why I decided upon the changes I did, you can check out the book list that I had read during that time.
I tried a lot of things especially in the beginning. so if you look at the page of my treatment, there is a section where I write about what I "eliminated." This might help you get an idea of what else I tried and what and why I stopped them. But to re-iterate, all my juices in the beginning consisted of carrot, romaine, celery or cucumber, and half an apple or so and barley green mixed in. I would basically put a measuring cup under the juicer and see that it filled at least the full cup. In the beginning I followed Dr.Lorraine Day's protocal of 8 glasses of juice a day and I even went beyond to about 13! But I later cut back to 4 a day, which I think I more practical (each drink being 2 cups worth--i.e. 2 cups 4xday). Looking back in retrospect, I can see how it's confusing. There was so much that I may have taken some info for granted! Especially the juice combo in the early phase. By the time I had started my website, I was pretty much transfusion free and just trying to document it for anyone interested. I did not list my counts while transfusion dependent because I didn't feel those mattered because the blood wasn't mine, but transfused blood.
Oh, and one last thing, the lemon water. . . I did do that for a couple years, but later became sensitive to lemons! So I don't recommend it every single day like I did it. My sensitivity came in "hives." I have since stopped it, and find that I can only take lemon water for about two weeks when the hives start to come back. So easy with the lemons. . .
Okay, I hope that's more clear! If not, let me know.
Take care!
Marla
numbers numbers numbers
Last Platelet Transfusion was on Wednesday.
Platelet counts:
Thursday 59! Friday 32 Monday 10 :(
Thus I'll be getting a platelet transfusion tomorrow unless (dear god) they don't drop from 10. That would be great! I'm actually feeling ok at 10. I decided to forego the blood transfusion that was scheduled for today (today is day 16 since the last blood transfusion). The red blood numbers aren't NORMAL by any account, BUT they seem to be holding ok. The goal here is to become transfusion free and in the meantime to space them out as far as possible as long as I feel ok. I'm not interested in crashing and burning. I am interested in encouragning the body to make it's own darn stuff and to stop relying on other people's blood.
RBC (red blood cell count): Friday 3.09 today 2.98 NORMAL 4.06-5.21
hemoglobin fri 9.2 today 9.2 :) NORMAL 12.5-16.6
hemocrit fri 26 today 25.2 small loss :) NORMAL 37-49
WBC Friday 1.4 today 1.2 :( NORMAL 4-10.6
I've only been on the juicing program for a few days now, but the reds are looking better. A very kind person made me two kinds of bone broth soup over the weekend and I suspect this has also helped my blood numbers.
No more sad movies. I managed again! to pick one out last night on a kid who died too young tear jerker. Only movies that make me laugh for now on! If you don't have any to contribute, please make recommendations and I'll see if I can get them on Netflix.
Platelet counts:
Thursday 59! Friday 32 Monday 10 :(
Thus I'll be getting a platelet transfusion tomorrow unless (dear god) they don't drop from 10. That would be great! I'm actually feeling ok at 10. I decided to forego the blood transfusion that was scheduled for today (today is day 16 since the last blood transfusion). The red blood numbers aren't NORMAL by any account, BUT they seem to be holding ok. The goal here is to become transfusion free and in the meantime to space them out as far as possible as long as I feel ok. I'm not interested in crashing and burning. I am interested in encouragning the body to make it's own darn stuff and to stop relying on other people's blood.
RBC (red blood cell count): Friday 3.09 today 2.98 NORMAL 4.06-5.21
hemoglobin fri 9.2 today 9.2 :) NORMAL 12.5-16.6
hemocrit fri 26 today 25.2 small loss :) NORMAL 37-49
WBC Friday 1.4 today 1.2 :( NORMAL 4-10.6
I've only been on the juicing program for a few days now, but the reds are looking better. A very kind person made me two kinds of bone broth soup over the weekend and I suspect this has also helped my blood numbers.
No more sad movies. I managed again! to pick one out last night on a kid who died too young tear jerker. Only movies that make me laugh for now on! If you don't have any to contribute, please make recommendations and I'll see if I can get them on Netflix.
Monday, June 21, 2010
Another Email from Marla, AA survivor & Her Story
Hello Karen:
I was transfusion dependent for 19 months. I got off the plt transfusions around 17 months. As far as how long it took me to see changes in my counts after changing my diet, I would say about a month or so after AA diagnosis, I was starting to learn to read the CBCs better, and that's when I noticed the first changes (improvements) were with the differentials of my white count. I had zip neutrophils early on, and while the total WBC remained low fro months, I could clearly see the differentials righting themselves even though I continued on to be transfusion dependent for months. At diagnosis my plt count was 1K. I noticed about a year later that my plts started to hold at around 4K, then a few months later 5K, then 8K. That is the point where I stopped taking plt transfusions. Then slowly month after month it started to continue to rise into the safer ranges. At around 19 months after diagnosis, my reds started to hoover in the 7 hbg, and that's where I stopped taking red transfusions. Then when I added meats back into my diet, the reds really jumped up quickly.
The similarities to me and Akshay is that both of us did not take the standard immunosuppressant therapies, and it took us about the same length of time to recover our counts. The differences is that he had issues with low calcium and fragile bones. I can't say exactly what his diet consisted of, as we never really discussed that too much. And I know he did take some homeopathy, which I did not. And I think he didn't start to juice until later in his recovery. I'm sure his parents would be happy to share more information with you regarding his treatment.
Other differences is that Akshay was diagnosed with some sort of hepatitis before he developed AA. I was not. His hep cause was unknown. Also I have had a life-long issue with skin problems for which I took medications and likely weakened my immune system and adrenals, etc. I don't think Akshay had that problem. Plus I am much older than he is. I think he's about 12 now? or so, and I am now 45. I was 34 at diagnosis. My last transfusion was in 2001 July 6.
Okay, hope that helps answer your questions! Thanks for sharing more info about yourself. I hope you keep in touch and if there is any more info that I can help you with, feel free to ask! I think my story on my webpage gives more details of what I went through, including the heavy female bleeding. (again, something Akshay didn't have to deal with).
All the best! Take care!
Marla
Marla's Story from her website:
How my aplastic anemia (AA) began or when it began remains unknown. However, it made its presence known to me in October of 1999. My very first symptoms appeared before I knew I was in trouble. It happened on a Monday while I was putting a file away at work. I sliced my finger on a file and put a bandage on the finger. But, I noticed about an hour or so later that the bandage on my finger was pretty drenched with blood. I thought that was odd because I had cuts like that before and never bled that much. I even made a joke about it saying that my finger looked like it was going to explode so, "stand back!" That same day, I developed a bruise on my left leg. By Wednesday, I woke up with these little red spots all over my legs, hands, and feet. (Which I later learned were petechia marks--bleeding under the skin.) I also noticed more bruising which looked unusual. Thursday night, I noticed unusual gum bleeding after I brushed my teeth. On Friday morning, the gum bleeding was more intense. While I was driving to work, I tasted a saltiness in my mouth. I looked in my rear view mirror at my teeth only to shock myself with all the blood I saw in my mouth. Still, it was payday and Friday, so on I continued and worked the full day. The next morning was Saturday. I woke up to yet another surprise of about 10 bruises on my legs, more bruises on my feet, arms, and hands. Alarmed, I woke my husband up to tell him to look at me, and he said as we were speaking, "You're getting another one on your hand." Bruises were developing on my body right before our eyes. Okay, now I was freaked out.
I ended up in ER that day. A blood test had shown that my platelets were at 1,000. Normal platelet levels are between 150,000-400,000. Someone had stolen mine!! I was admitted to the hospital (thinking that they could help me find my platelets), and the next day I had a bone marrow biopsy and aspiration. ("Wowsy". . .That's about all you probably want to hear about that.) I stayed in the hospital for a week, and during that time, I had steroids, my first platelet transfusion, a diagnosis of a prolapsed mitral valve (heart valve problem) and aplastic anemia. Now things were starting to overwhelm me, and I wouldn't consent to any specific treatment, so I was told to go home and come in to the doctor's office in a couple days.
A complete blood count (CBC) taken at the doctor's office indicated that my blood levels were continuing to drop. Before the week ended, I was back in ER with an infection in my gums and on my right arm where the IV site was of my second platelet transfusion. This time, my hemoglobin was 5.0 (normal range for a woman is 12-16), white count was .5 (normal range is 4-11), ANC of 0, and platelets, after a transfusion, was 5,000. Once again I was admitted to the hospital. During this stay, I got the pleasure of receiving IV antibiotics, my first red blood cell transfusion with chills, more platelet transfusions with hives, hormones to try to stop my menstrual cycle which had already begun, a not so lovely PICC line, and was told that I was already refractory (not responding) to platelets. I went home from this stay with Provera (hormone to prevent menstrual cycle) and a prescription for a three months supply of Ciproflaxin aka Cipro (antibiotic).
I still did not want conventional medical treatment for my AA, so for about three months, I had supportive care wherein I accepted red blood and platelet transfusions via my PICC line. I was getting platelet transfusions almost every other day, and red cell transfusions almost every week. But, alas, my PICC line site became infected and had to be removed. I found myself once again looking out the window of a hospital room while I laid on the hospital bed with more IV antibiotics pumping through my veins, and my arm where a PICC line once resided, wrapped in a heating pad. I was running a fever that reached 106 degrees because of the infection in my arm. I had develop cellulitis on that arm which made my arm twice its normal size and very painful. My arm had developed a huge rash, was peeling, hot to the touch, hard, and inflamed. I was released from the hospital after a week and sent home with IV antibiotics which was to be administered to me for another week with a home health service. After a week of the home IV antibiotic, I was to take another week of oral antibiotic, Doxycycline.
I continued for another five months with weekly transfusions of both platelets and red cells until my menstrual cycle got the fine idea of trying to allow my body to drain it's blood supply via my uterus. So, I ended up in ER and was admitted to the hospital again where I stayed a few days to get my menstrual cycle under control and my body tanked up with more blood so I would resemble a live person. This time, I was sent home with birth control pills, Demulin, to control my female cycle. I was not to take the placebos so that I wouldn't have a cycle at all. Well, things didn't work out as planned. I started my menstrual cycle again anyway, but this time it was even heavier than before and lasted for about a month! Of course my transfusion rate increased at this time because the blood was being pumped into my veins while at the same time just dropping out through my period. (I guess my exit door had been left wide open.) After going through this nonsense for about a month, I had a transfusion on a Friday, and by Monday, I had to be taken to the hospital by ambulance. My hemoglobin level had dropped down to 3.7. (I know others have been able to walk into the hospital with this level, but I guess with all this fast yo-yoing of blood in-blood out business, I could not get up without starting to black out. I just wanted to be left alone to die by then, but my family wouldn't have it.) At this point, I didn't care anymore. I was so tired. I accepted to have an endometrial ablation done to stop the bleeding and had more transfusions, but that was all. The endometrial ablation was done, I got tanked up again with blood, and I was sent home again to continue my exciting life of regular visits to the doctor for CBC's and visits to the Procedure Center for transfusions.
Eleven months later on July 6, 2001, after using 89 units of platelets and 86 units of red cells, I received my last transfusion. (Although I didn't know it at the time.) After a total of 19 months, my hemoglobin started to hover in the 7's, and my platelets remained above 10K. I was very functional and asymptomatic at this level, so my poor little veins finally got the long needed rest it deserved. Finally! Progress!
She continues with CBC (blood counts) and the ups and downs she went through. However, as of now, she hasn't had a transfusion in over 8 years. She is, in my humble opinion, a brave and remarkable woman.
Some of you have requested My Story. It's coming.
I was transfusion dependent for 19 months. I got off the plt transfusions around 17 months. As far as how long it took me to see changes in my counts after changing my diet, I would say about a month or so after AA diagnosis, I was starting to learn to read the CBCs better, and that's when I noticed the first changes (improvements) were with the differentials of my white count. I had zip neutrophils early on, and while the total WBC remained low fro months, I could clearly see the differentials righting themselves even though I continued on to be transfusion dependent for months. At diagnosis my plt count was 1K. I noticed about a year later that my plts started to hold at around 4K, then a few months later 5K, then 8K. That is the point where I stopped taking plt transfusions. Then slowly month after month it started to continue to rise into the safer ranges. At around 19 months after diagnosis, my reds started to hoover in the 7 hbg, and that's where I stopped taking red transfusions. Then when I added meats back into my diet, the reds really jumped up quickly.
The similarities to me and Akshay is that both of us did not take the standard immunosuppressant therapies, and it took us about the same length of time to recover our counts. The differences is that he had issues with low calcium and fragile bones. I can't say exactly what his diet consisted of, as we never really discussed that too much. And I know he did take some homeopathy, which I did not. And I think he didn't start to juice until later in his recovery. I'm sure his parents would be happy to share more information with you regarding his treatment.
Other differences is that Akshay was diagnosed with some sort of hepatitis before he developed AA. I was not. His hep cause was unknown. Also I have had a life-long issue with skin problems for which I took medications and likely weakened my immune system and adrenals, etc. I don't think Akshay had that problem. Plus I am much older than he is. I think he's about 12 now? or so, and I am now 45. I was 34 at diagnosis. My last transfusion was in 2001 July 6.
Okay, hope that helps answer your questions! Thanks for sharing more info about yourself. I hope you keep in touch and if there is any more info that I can help you with, feel free to ask! I think my story on my webpage gives more details of what I went through, including the heavy female bleeding. (again, something Akshay didn't have to deal with).
All the best! Take care!
Marla
Marla's Story from her website:
How my aplastic anemia (AA) began or when it began remains unknown. However, it made its presence known to me in October of 1999. My very first symptoms appeared before I knew I was in trouble. It happened on a Monday while I was putting a file away at work. I sliced my finger on a file and put a bandage on the finger. But, I noticed about an hour or so later that the bandage on my finger was pretty drenched with blood. I thought that was odd because I had cuts like that before and never bled that much. I even made a joke about it saying that my finger looked like it was going to explode so, "stand back!" That same day, I developed a bruise on my left leg. By Wednesday, I woke up with these little red spots all over my legs, hands, and feet. (Which I later learned were petechia marks--bleeding under the skin.) I also noticed more bruising which looked unusual. Thursday night, I noticed unusual gum bleeding after I brushed my teeth. On Friday morning, the gum bleeding was more intense. While I was driving to work, I tasted a saltiness in my mouth. I looked in my rear view mirror at my teeth only to shock myself with all the blood I saw in my mouth. Still, it was payday and Friday, so on I continued and worked the full day. The next morning was Saturday. I woke up to yet another surprise of about 10 bruises on my legs, more bruises on my feet, arms, and hands. Alarmed, I woke my husband up to tell him to look at me, and he said as we were speaking, "You're getting another one on your hand." Bruises were developing on my body right before our eyes. Okay, now I was freaked out.
I ended up in ER that day. A blood test had shown that my platelets were at 1,000. Normal platelet levels are between 150,000-400,000. Someone had stolen mine!! I was admitted to the hospital (thinking that they could help me find my platelets), and the next day I had a bone marrow biopsy and aspiration. ("Wowsy". . .That's about all you probably want to hear about that.) I stayed in the hospital for a week, and during that time, I had steroids, my first platelet transfusion, a diagnosis of a prolapsed mitral valve (heart valve problem) and aplastic anemia. Now things were starting to overwhelm me, and I wouldn't consent to any specific treatment, so I was told to go home and come in to the doctor's office in a couple days.
A complete blood count (CBC) taken at the doctor's office indicated that my blood levels were continuing to drop. Before the week ended, I was back in ER with an infection in my gums and on my right arm where the IV site was of my second platelet transfusion. This time, my hemoglobin was 5.0 (normal range for a woman is 12-16), white count was .5 (normal range is 4-11), ANC of 0, and platelets, after a transfusion, was 5,000. Once again I was admitted to the hospital. During this stay, I got the pleasure of receiving IV antibiotics, my first red blood cell transfusion with chills, more platelet transfusions with hives, hormones to try to stop my menstrual cycle which had already begun, a not so lovely PICC line, and was told that I was already refractory (not responding) to platelets. I went home from this stay with Provera (hormone to prevent menstrual cycle) and a prescription for a three months supply of Ciproflaxin aka Cipro (antibiotic).
I still did not want conventional medical treatment for my AA, so for about three months, I had supportive care wherein I accepted red blood and platelet transfusions via my PICC line. I was getting platelet transfusions almost every other day, and red cell transfusions almost every week. But, alas, my PICC line site became infected and had to be removed. I found myself once again looking out the window of a hospital room while I laid on the hospital bed with more IV antibiotics pumping through my veins, and my arm where a PICC line once resided, wrapped in a heating pad. I was running a fever that reached 106 degrees because of the infection in my arm. I had develop cellulitis on that arm which made my arm twice its normal size and very painful. My arm had developed a huge rash, was peeling, hot to the touch, hard, and inflamed. I was released from the hospital after a week and sent home with IV antibiotics which was to be administered to me for another week with a home health service. After a week of the home IV antibiotic, I was to take another week of oral antibiotic, Doxycycline.
I continued for another five months with weekly transfusions of both platelets and red cells until my menstrual cycle got the fine idea of trying to allow my body to drain it's blood supply via my uterus. So, I ended up in ER and was admitted to the hospital again where I stayed a few days to get my menstrual cycle under control and my body tanked up with more blood so I would resemble a live person. This time, I was sent home with birth control pills, Demulin, to control my female cycle. I was not to take the placebos so that I wouldn't have a cycle at all. Well, things didn't work out as planned. I started my menstrual cycle again anyway, but this time it was even heavier than before and lasted for about a month! Of course my transfusion rate increased at this time because the blood was being pumped into my veins while at the same time just dropping out through my period. (I guess my exit door had been left wide open.) After going through this nonsense for about a month, I had a transfusion on a Friday, and by Monday, I had to be taken to the hospital by ambulance. My hemoglobin level had dropped down to 3.7. (I know others have been able to walk into the hospital with this level, but I guess with all this fast yo-yoing of blood in-blood out business, I could not get up without starting to black out. I just wanted to be left alone to die by then, but my family wouldn't have it.) At this point, I didn't care anymore. I was so tired. I accepted to have an endometrial ablation done to stop the bleeding and had more transfusions, but that was all. The endometrial ablation was done, I got tanked up again with blood, and I was sent home again to continue my exciting life of regular visits to the doctor for CBC's and visits to the Procedure Center for transfusions.
Eleven months later on July 6, 2001, after using 89 units of platelets and 86 units of red cells, I received my last transfusion. (Although I didn't know it at the time.) After a total of 19 months, my hemoglobin started to hover in the 7's, and my platelets remained above 10K. I was very functional and asymptomatic at this level, so my poor little veins finally got the long needed rest it deserved. Finally! Progress!
She continues with CBC (blood counts) and the ups and downs she went through. However, as of now, she hasn't had a transfusion in over 8 years. She is, in my humble opinion, a brave and remarkable woman.
Some of you have requested My Story. It's coming.
Saturday, June 19, 2010
A Plea for More Entertainment
My sleek BMW of juicers unfortunately seems to share some of the characteristics I've often heard about BMW.....hard to maintain. Darn it. Somewhat difficult to clean. And, just for the record, the juicer that is supposed to juice all things, the Green Star 5000, doesn't like blueberries. Nope. Don't do it. No blueberries. I guess I'll have to use the blender for the blueberries in the future. Very sad.
Platelets on Thursday was actually 59! which is quite a boost from the transfustion I had on Wednesday.
Platelets on Friday was 32. Quite a drop. Darn it. I'm wondering if the movie that I watched that made me cry contributed to the drop. Lately, I've had a knack for picking out movies on hulu.com that involve some terrible the-person-is-to-young-to-die death disease. Strange.
So. This is a call for your favorite, uplifting, non-violent, non-depressing DVD and/or book. I don't need too many, but I would love to borrow a few to keep me entertained at night.
Platelets on Thursday was actually 59! which is quite a boost from the transfustion I had on Wednesday.
Platelets on Friday was 32. Quite a drop. Darn it. I'm wondering if the movie that I watched that made me cry contributed to the drop. Lately, I've had a knack for picking out movies on hulu.com that involve some terrible the-person-is-to-young-to-die death disease. Strange.
So. This is a call for your favorite, uplifting, non-violent, non-depressing DVD and/or book. I don't need too many, but I would love to borrow a few to keep me entertained at night.
Friday, June 18, 2010
An Email from A Breast Cancer Survivor
Just What You Need.....more advice
Hi Karen
I have been following your blog and your incredible journey. I have been silent in my advice because the only thing I can advise is to do what your higher self tells you is right and good and correct.
But, I do have something to share. You may or may not remember that I am a breast cancer survivor. It was also quite a journey, although in no way as intense as yours.
I learned lots. This is what I want to share, (but you probably already know !!!), Much of the friendly( as in friends, not as in medical or alternative knowledge) advice you will get ( to do or not to do. to medicate or not to medicate. etc) comes from good intent, but is often based in someone's own dark and personal fear. Their fear for you...their fear for themselves. In my case, I had to stop sharing and talking with some friends...and they were and are my friends...because I just could not take on their fear. I had enough of my own personal fear thank you very much ...I did not want and could not carry theirs. True Yogis are strong. Not everyone is. Sometimes good intent coming from fear just gums up the works if you know what I mean. I found myself reassuring people that I was OK so they would be OK. It was exhausting and not doing me any good. I don't know if this is happening to you....but if you find this is where things are going with someone....just take care not to absorb their fear. I hope you don't think I am nuts...well, maybe I am...but this was just my experience and perhaps somewhere it may be helpful for you. One example which happened to me...and won't happen to you.....I called a friend who I knew for many years here in Santa Fe when I was first diagnosed because I thought she would be a good emotional support. When I told her my circumstance, she said " I am so upset and freaked out I can't talk to you right now. I can't handle this. I will call you back and we will discuss what is happening". I NEVER heard from her again. Can you believe it????? I finally ran into 5 years later and she asked how I was........really !!!!!
So my friend, take strength from those who can give it, reject fear when it comes knocking on your door, and know that many love you right along side of God. Who knows what any of this means....but if you find out.....I"ll be first on your list to listen.
I send you my love and my positive energy.
X X X
A friend
Hi Karen
I have been following your blog and your incredible journey. I have been silent in my advice because the only thing I can advise is to do what your higher self tells you is right and good and correct.
But, I do have something to share. You may or may not remember that I am a breast cancer survivor. It was also quite a journey, although in no way as intense as yours.
I learned lots. This is what I want to share, (but you probably already know !!!), Much of the friendly( as in friends, not as in medical or alternative knowledge) advice you will get ( to do or not to do. to medicate or not to medicate. etc) comes from good intent, but is often based in someone's own dark and personal fear. Their fear for you...their fear for themselves. In my case, I had to stop sharing and talking with some friends...and they were and are my friends...because I just could not take on their fear. I had enough of my own personal fear thank you very much ...I did not want and could not carry theirs. True Yogis are strong. Not everyone is. Sometimes good intent coming from fear just gums up the works if you know what I mean. I found myself reassuring people that I was OK so they would be OK. It was exhausting and not doing me any good. I don't know if this is happening to you....but if you find this is where things are going with someone....just take care not to absorb their fear. I hope you don't think I am nuts...well, maybe I am...but this was just my experience and perhaps somewhere it may be helpful for you. One example which happened to me...and won't happen to you.....I called a friend who I knew for many years here in Santa Fe when I was first diagnosed because I thought she would be a good emotional support. When I told her my circumstance, she said " I am so upset and freaked out I can't talk to you right now. I can't handle this. I will call you back and we will discuss what is happening". I NEVER heard from her again. Can you believe it????? I finally ran into 5 years later and she asked how I was........really !!!!!
So my friend, take strength from those who can give it, reject fear when it comes knocking on your door, and know that many love you right along side of God. Who knows what any of this means....but if you find out.....I"ll be first on your list to listen.
I send you my love and my positive energy.
X X X
A friend
Clarification
I have gotten a few messages from some of you saying something along the lines of "we hear you are not going to do the bone marrow transplant."
Let me clear. I never said that.
However, the very first doctor that I encountered at St. Vincent's Hospital the first night I was in ER said it bluntly "You should do everything you can to avoid a bone marrow transplant."
Some of you have strong opinions on what you think I should do--in one direction or another. While I really appreciate your concern for my well-being, I am in a process of carefully researched exploration.
No options have been eliminated at this time.
My reality is this:
Yesterday I had a Platelet Transfusion, which was 6 days from the previous transfusion. The last transfusion was only 5 days apart. This is one day progress. Today my platelets were 51.
My WBC went up from yesterday.
I have not had a blood transfusion for 12 days. The last transfusion was only 7 days apart although previously they were averaging about 10 days apart. While my hemocrit is lower than it was yesterday, I hope that I might be able to wait another 3-4 days at least for another blood transfusion. This too shows progress.
Yesterday's blog featured Marla Brown's recommendations. My BMW of juicers (the Green Star 5000) arrived today. I sent Marla an email this morning asking various questions and this is what she wrote back (though she didn't answer all of my questions, I hope that she will).
Dear Karen
Very briefly, I am currently doing well and transfusion-free. While I do continue to eat as much organic foods as possible, I am not as strict as I used to be. That is, I do go out and eat at restaurants again, but still no junk foods or snacks such as sodas or processed, prepackaged foods. I did start out vegan in the beginning, but I currently don't recommend a strictly vegan diet anymore because I do believe that people with blood disorders need some animal products especially since true B12 only comes from animal sources and the body does need some saturated fats, etc. I would currently recommend avoiding sweets such as fruits in the AMs, and eat those after lunchtime as too much sugar in the AMs is stressful to the adrenal glands.
I would say that it's a rare person who would forego conventional medical treatment like I did. My first inspiration was from Roger Fortin, who has since passed away due to a heart condition. He did make a full recovery and lived well for about 5 years after he recovered. I did write a small thing about him on my website. The other person who tried to go it naturally was John Hess, but he had MDS, not AA, AND he did some things that I would not recommend such as competing in running competitions. So that would leave only one person I know of who has foregone the conventional IST, and his name is Akshay. He is a young boy whose parents oversaw his treatment. He recovered and took about the same amount of time I did. Our cases have similarities and differences, but that will take more time to discuss. I do know of a couple other people who are trying to go natural, but only after they have already taken the standard treatments which did not help them. So far they are still taking transfusions.
Take care!
Marla
Here is another letter than I received from someone who went through the ATG treatment twice:
Hi Karen, well my counts were really low too - I had less then 10 on the platelet count, and my white cells were below 0.5, reds were around 8 or 9 I think. My first round of ATG didn't seem to do much so after 4 or 5 months we tried a second round. There was eventually some improvement around a year after diagnosis but I had a year and a half of transfusions in the meantime. I've followed Bruce's story too but not sure about the alternative treatments, I did try chinese herbs for a while but gave up mostly due to the disgusting taste !
Andrew
(Still alive after treatment 10 years ago. He got AA when he was 38).
Let me clear. I never said that.
However, the very first doctor that I encountered at St. Vincent's Hospital the first night I was in ER said it bluntly "You should do everything you can to avoid a bone marrow transplant."
Some of you have strong opinions on what you think I should do--in one direction or another. While I really appreciate your concern for my well-being, I am in a process of carefully researched exploration.
No options have been eliminated at this time.
My reality is this:
Yesterday I had a Platelet Transfusion, which was 6 days from the previous transfusion. The last transfusion was only 5 days apart. This is one day progress. Today my platelets were 51.
My WBC went up from yesterday.
I have not had a blood transfusion for 12 days. The last transfusion was only 7 days apart although previously they were averaging about 10 days apart. While my hemocrit is lower than it was yesterday, I hope that I might be able to wait another 3-4 days at least for another blood transfusion. This too shows progress.
Yesterday's blog featured Marla Brown's recommendations. My BMW of juicers (the Green Star 5000) arrived today. I sent Marla an email this morning asking various questions and this is what she wrote back (though she didn't answer all of my questions, I hope that she will).
Dear Karen
Very briefly, I am currently doing well and transfusion-free. While I do continue to eat as much organic foods as possible, I am not as strict as I used to be. That is, I do go out and eat at restaurants again, but still no junk foods or snacks such as sodas or processed, prepackaged foods. I did start out vegan in the beginning, but I currently don't recommend a strictly vegan diet anymore because I do believe that people with blood disorders need some animal products especially since true B12 only comes from animal sources and the body does need some saturated fats, etc. I would currently recommend avoiding sweets such as fruits in the AMs, and eat those after lunchtime as too much sugar in the AMs is stressful to the adrenal glands.
I would say that it's a rare person who would forego conventional medical treatment like I did. My first inspiration was from Roger Fortin, who has since passed away due to a heart condition. He did make a full recovery and lived well for about 5 years after he recovered. I did write a small thing about him on my website. The other person who tried to go it naturally was John Hess, but he had MDS, not AA, AND he did some things that I would not recommend such as competing in running competitions. So that would leave only one person I know of who has foregone the conventional IST, and his name is Akshay. He is a young boy whose parents oversaw his treatment. He recovered and took about the same amount of time I did. Our cases have similarities and differences, but that will take more time to discuss. I do know of a couple other people who are trying to go natural, but only after they have already taken the standard treatments which did not help them. So far they are still taking transfusions.
Take care!
Marla
Here is another letter than I received from someone who went through the ATG treatment twice:
Hi Karen, well my counts were really low too - I had less then 10 on the platelet count, and my white cells were below 0.5, reds were around 8 or 9 I think. My first round of ATG didn't seem to do much so after 4 or 5 months we tried a second round. There was eventually some improvement around a year after diagnosis but I had a year and a half of transfusions in the meantime. I've followed Bruce's story too but not sure about the alternative treatments, I did try chinese herbs for a while but gave up mostly due to the disgusting taste !
Andrew
(Still alive after treatment 10 years ago. He got AA when he was 38).
Wednesday, June 16, 2010
Emails from Other AA Patients For Your Consideration
My primary acupuncturist and I are seriously considering the following information:
Dear Mr. and Mrs. Strasberg,
I am sorry your son has been sick, but I am glad that he is feeling better. It is good if he is not getting blood transfusions. I am not taking homeopathy. I am happy if it is working for him. It is very good that your son's food has changed to the Macrobiotics. Macrobiotics is a good change, there is much more you can do to make his diet better. I am happy to tell you about it.
Doctors diagnosed me with aplastic anemia October 1999. My body was not making blood for itself. I had to take many, many blood transfusions. A bone marrow test showed that there was not much bone marrow in my bones. Doctors told me that if I did not take their drugs, I would live only from 3 to 6 months. They offered ATG, ALG, cyclosporine, prednisone, and neupogen. I did not take the drugs the doctors wanted to give me. Since I was a child, I had been taking shots and medicine for my skin allergies. Maybe drugs helped me get sick. I had to think for my self and make my own informed choice. My husband helped me. Any good doctor should tell us that drugs are poisonous. Drugs can help, but they can also hurt. I took natural Chinese Medicine for a few months, but I do think it helped me.
After doing a lot of research, I have accepted a natural plan. We have bought a lot of books. Over the many months I have worked on making my plan better and throwing away what is not working. I am getting better and have not had a blood transfusion for 17 weeks. (4 months now)
Here is my plan that is working for me. I eat no eggs, no fish, no poultry, no meat, no cheese, no milk, and no food from animals. I drink the juice of one lemon in water first in the morning. Lemon is a powerful cleaner for the body. Wait a while. I drink 1 cup fresh orange juice. Wait about 1/2 hour then eat only fresh fruit for breakfast. Mid morning I drink 2 cups fresh carrot juice with a tablespoon of ground flaxseed and a tablespoon of dried barley grass powder. For lunch, I may eat some brown rice, some black beans or lentils, and a big fresh raw salad. Use a green leafy letuce such as romaine lettuce and finely cut cabbage and some raw root vegetables chopped up. A little sea salt, ground sesame seeds, raw apple cider vinegar, extra virgin olive oil, honey or herbs for flavor on the salad. Sometimes I steam some vegetables too. If he can tolerate sprouts, that is very nutritious too. An hour after lunch I drink one cup of fresh romaine lettuce juice and one cup of carrot juice and one tablespoon dried barley grass powder. One hour before dinner I drink one cup fresh cucumber juice (helps circulation), one cup fresh carrot juice, and one tablespoon dried barley grass powder. Dinner is very much like lunch. Eat big raw fresh salads with a baked potato. Sometimes I eat black beans and onions too. Add some fresh raw root vegetables such as radish or carrot. Buy no salad dressings in a bottle. Make your own. One hour after dinner I drink 1 cup carrot juice, and one cup beet juice with one tablespoon dried barley juice powder. Before bed I drink one fresh squeezed lemon in a cup of water. You will find that the longer you are on this diet, you will find more and more vegetables and fruits that you can eat. Try to buy vegetables without chemical fertilizers or pesticides. I have also used some macrobiotic recipes which I find is good for me.
Other important parts of the plan are as follows. Drink at least 8 cups of water through the day. Don't let cleaning chemicals touch his skin. Don't use shampoos for cleaning the hair. Shampoos contain detergents that can soak right into the skin down to the bones. Use natural soap instead. Read the Bible each day and pray to God. Don't just say nice prayers, if you have any problems with God and the way He is working with you or the way He is working with the world, then let Him know it in prayer. Always be thankful to God. Learn thankfulness. Sunlight on the skin and bright daylight coming into our eyes is important for many reasons, but for me, too much sunlight can lower my blood levels. So I have to be careful. Fresh air is very important. I sleep with the window open every night. Walking is also important exercise. Making the body sweat out poisons with a hot shower is good. But, be careful for a person with low blood levels. Too much heat may make us weak.
Try to stay away from electrical transformers and electrical wires. Electrical fields hurt the bone marrow. Do not use microwave ovens or cellular phones. Keep away from electrical appliances especially while sleeping. Your alarm clock or radio should be far away from your bed while you sleep. If you can, make a copper wire go from the ground to your body while you sleep to protect you from electrical currents and fields while you sleep.
Sleeping at the right times is very important for healing the body. Stay away from stress and anger. Anger hurts your immune system and bone marrow. Do not eat or drink anything artificial. No white or brown sugar (a little raw honey is alright), no white bread, no white sweet breads, no white rice, no coffee, no tobacco, no tea (some herbal teas like peppermint tea is Ok), no colas, especially no coca cola.
I take only one vitamin--B12 from vegetables not from meat. And I take Barleygreen dried grass powder. Take no other vitamins. Raw food is the best source of vitamins and vitamins made in a factory can be bad for the body.
My sickness perhaps has been worse than Gabriel's sickness. I believe that Gabriel can be helped from the method I am using. Maybe you do not have enough time to do everything I do. I have had 89 platelet transfusions and 86 red blood transfusions. Without drugs, I have improved so that I have not had a transfusion for 17 weeks. Thank God. Drugs may seem to help at first, but they will cause other diseases. Drugs are very hard on the liver and kidneys. I think your choice not to take drugs is a good choice especially since Gabriel's liver is already having trouble. Have patience and do as much the natural way as you can. The more powerful natural things you do, the faster you will get well. Listen to your body.
Try to eat at least 75% raw fruits and vegetables. If you cannot drink as much fresh juice as I do, try to drink at least 4 cups fresh carrot juice each day. Carrot juice is powerful medicine.
We are very sick people and need to be very careful to get well and stay well. This take time and much patience. I hope this helps you.
Marla Brown
----- Original Message -----
DEAR MARLA:
I WRITE YOU BY SUGGEST MARY HUBBEL. SHE SAID ME ABOUT OUR "SAME" TREATMENT.-
MY SON GABRIEL STRASBERG, 20 YEARS AGE, HAS APLASTIC ANEMIA POST-HEPATITIS. HE WAS TREATED WITH ATG, CYCLOSPORINE, G-CSF AND OTHER DRUGS.-
HE IS ILL AROUND 12/12/00, AND HE WAS VERY BAD.-
WE SUSPECT THAT THE MD (OF BUENOS AIRES ) WAS WRONG IN THE TREATMENT BECAUSE THE TOXICITY OF THE MEDICINE THEY GAVE GABRIEL PRODUCE LAMINAR HAEMATOMA without spinal cord compression AND "PARAPARESIA" ( HE CAN`T MOVE LEGS, CAN`T URINATE, AND THEY PUT A CATHETER INTO HIS PENIS AROUND THREE WEEKS).-
WHEN GABRIEL WAS FINE AND HE CAN TRAVELL WE WENT TO VISIT NEAL YOUNG OF THE NIH (BETHESDA-MARYLAND) AND HE SAID WE COULD TAKE THE RABITT TREATMENT WITH 50% PROBABILITY SUCCESFUL.-
IN THE MEANTIME WE BEGIN AN HOMEOPHATIC TREATMENT, AND WE NOT TAKE THE TREATMENT SUGGESTED BECAUSE WE KNEW IT WAS VERY HARD AND WITH LOW PROBABILITY.-
COME BACK HOME ON SEPTEMBER 2001, AFTER THE CRAZY ATTEMPT OF BEN LADEN (WE STOOD IN BETHESDA FIVE DAYS WITHOUT AIRPLAINS 09/11 TO 09/16) THE HOMEOPATIC MD GAVE GABRIEL MACROBIOTIC FOOD, AND THEN WE LEAVES THE ALOPATIC MEDICINE.-
AT LAST, TODAY, THE BLOOD COUNT IS THE SAME WHEN HE IS BAD, BUT A MIRACLE IS GOING ON. HE IS WORKING 4/5 HOURS WITH ME, HE WALKS VERY GOOD, HE HAS A GOOD CLINICAL LEVEL, AND HE IS LESS TIRED THAN BEFORE THE TREATMENT.-
WE WISH TALK ABOUT HOMEOPATIC TREATMENT WITH YOU, IF YOU AGREE.-
AT LAST, BUT NOT THE LEAST, I REQUEST YOUT PARDON BECAUSE I UNDERSTAND ENGLISH BETTER THAN I WRITE IT. PERHAPS YOU DONT UNDERSTAND SOME WORDS OR SENTENCE. IN THE EVENT OF THAT, PLEASE SAID ME.-
IF YOU WANT EMAIL WHIT US ABOUT OUR "SUFFERS" PLEASE ANSWER OUR "LETTER" AS SOON AS POSIBLE.-
DANIEL Y ESTER STRASBERG
Both Marla and Gabriel are still alive today. Daniel sent me this email and I am in the process of emailing Marla for more information.
Dear Mr. and Mrs. Strasberg,
I am sorry your son has been sick, but I am glad that he is feeling better. It is good if he is not getting blood transfusions. I am not taking homeopathy. I am happy if it is working for him. It is very good that your son's food has changed to the Macrobiotics. Macrobiotics is a good change, there is much more you can do to make his diet better. I am happy to tell you about it.
Doctors diagnosed me with aplastic anemia October 1999. My body was not making blood for itself. I had to take many, many blood transfusions. A bone marrow test showed that there was not much bone marrow in my bones. Doctors told me that if I did not take their drugs, I would live only from 3 to 6 months. They offered ATG, ALG, cyclosporine, prednisone, and neupogen. I did not take the drugs the doctors wanted to give me. Since I was a child, I had been taking shots and medicine for my skin allergies. Maybe drugs helped me get sick. I had to think for my self and make my own informed choice. My husband helped me. Any good doctor should tell us that drugs are poisonous. Drugs can help, but they can also hurt. I took natural Chinese Medicine for a few months, but I do think it helped me.
After doing a lot of research, I have accepted a natural plan. We have bought a lot of books. Over the many months I have worked on making my plan better and throwing away what is not working. I am getting better and have not had a blood transfusion for 17 weeks. (4 months now)
Here is my plan that is working for me. I eat no eggs, no fish, no poultry, no meat, no cheese, no milk, and no food from animals. I drink the juice of one lemon in water first in the morning. Lemon is a powerful cleaner for the body. Wait a while. I drink 1 cup fresh orange juice. Wait about 1/2 hour then eat only fresh fruit for breakfast. Mid morning I drink 2 cups fresh carrot juice with a tablespoon of ground flaxseed and a tablespoon of dried barley grass powder. For lunch, I may eat some brown rice, some black beans or lentils, and a big fresh raw salad. Use a green leafy letuce such as romaine lettuce and finely cut cabbage and some raw root vegetables chopped up. A little sea salt, ground sesame seeds, raw apple cider vinegar, extra virgin olive oil, honey or herbs for flavor on the salad. Sometimes I steam some vegetables too. If he can tolerate sprouts, that is very nutritious too. An hour after lunch I drink one cup of fresh romaine lettuce juice and one cup of carrot juice and one tablespoon dried barley grass powder. One hour before dinner I drink one cup fresh cucumber juice (helps circulation), one cup fresh carrot juice, and one tablespoon dried barley grass powder. Dinner is very much like lunch. Eat big raw fresh salads with a baked potato. Sometimes I eat black beans and onions too. Add some fresh raw root vegetables such as radish or carrot. Buy no salad dressings in a bottle. Make your own. One hour after dinner I drink 1 cup carrot juice, and one cup beet juice with one tablespoon dried barley juice powder. Before bed I drink one fresh squeezed lemon in a cup of water. You will find that the longer you are on this diet, you will find more and more vegetables and fruits that you can eat. Try to buy vegetables without chemical fertilizers or pesticides. I have also used some macrobiotic recipes which I find is good for me.
Other important parts of the plan are as follows. Drink at least 8 cups of water through the day. Don't let cleaning chemicals touch his skin. Don't use shampoos for cleaning the hair. Shampoos contain detergents that can soak right into the skin down to the bones. Use natural soap instead. Read the Bible each day and pray to God. Don't just say nice prayers, if you have any problems with God and the way He is working with you or the way He is working with the world, then let Him know it in prayer. Always be thankful to God. Learn thankfulness. Sunlight on the skin and bright daylight coming into our eyes is important for many reasons, but for me, too much sunlight can lower my blood levels. So I have to be careful. Fresh air is very important. I sleep with the window open every night. Walking is also important exercise. Making the body sweat out poisons with a hot shower is good. But, be careful for a person with low blood levels. Too much heat may make us weak.
Try to stay away from electrical transformers and electrical wires. Electrical fields hurt the bone marrow. Do not use microwave ovens or cellular phones. Keep away from electrical appliances especially while sleeping. Your alarm clock or radio should be far away from your bed while you sleep. If you can, make a copper wire go from the ground to your body while you sleep to protect you from electrical currents and fields while you sleep.
Sleeping at the right times is very important for healing the body. Stay away from stress and anger. Anger hurts your immune system and bone marrow. Do not eat or drink anything artificial. No white or brown sugar (a little raw honey is alright), no white bread, no white sweet breads, no white rice, no coffee, no tobacco, no tea (some herbal teas like peppermint tea is Ok), no colas, especially no coca cola.
I take only one vitamin--B12 from vegetables not from meat. And I take Barleygreen dried grass powder. Take no other vitamins. Raw food is the best source of vitamins and vitamins made in a factory can be bad for the body.
My sickness perhaps has been worse than Gabriel's sickness. I believe that Gabriel can be helped from the method I am using. Maybe you do not have enough time to do everything I do. I have had 89 platelet transfusions and 86 red blood transfusions. Without drugs, I have improved so that I have not had a transfusion for 17 weeks. Thank God. Drugs may seem to help at first, but they will cause other diseases. Drugs are very hard on the liver and kidneys. I think your choice not to take drugs is a good choice especially since Gabriel's liver is already having trouble. Have patience and do as much the natural way as you can. The more powerful natural things you do, the faster you will get well. Listen to your body.
Try to eat at least 75% raw fruits and vegetables. If you cannot drink as much fresh juice as I do, try to drink at least 4 cups fresh carrot juice each day. Carrot juice is powerful medicine.
We are very sick people and need to be very careful to get well and stay well. This take time and much patience. I hope this helps you.
Marla Brown
----- Original Message -----
DEAR MARLA:
I WRITE YOU BY SUGGEST MARY HUBBEL. SHE SAID ME ABOUT OUR "SAME" TREATMENT.-
MY SON GABRIEL STRASBERG, 20 YEARS AGE, HAS APLASTIC ANEMIA POST-HEPATITIS. HE WAS TREATED WITH ATG, CYCLOSPORINE, G-CSF AND OTHER DRUGS.-
HE IS ILL AROUND 12/12/00, AND HE WAS VERY BAD.-
WE SUSPECT THAT THE MD (OF BUENOS AIRES ) WAS WRONG IN THE TREATMENT BECAUSE THE TOXICITY OF THE MEDICINE THEY GAVE GABRIEL PRODUCE LAMINAR HAEMATOMA without spinal cord compression AND "PARAPARESIA" ( HE CAN`T MOVE LEGS, CAN`T URINATE, AND THEY PUT A CATHETER INTO HIS PENIS AROUND THREE WEEKS).-
WHEN GABRIEL WAS FINE AND HE CAN TRAVELL WE WENT TO VISIT NEAL YOUNG OF THE NIH (BETHESDA-MARYLAND) AND HE SAID WE COULD TAKE THE RABITT TREATMENT WITH 50% PROBABILITY SUCCESFUL.-
IN THE MEANTIME WE BEGIN AN HOMEOPHATIC TREATMENT, AND WE NOT TAKE THE TREATMENT SUGGESTED BECAUSE WE KNEW IT WAS VERY HARD AND WITH LOW PROBABILITY.-
COME BACK HOME ON SEPTEMBER 2001, AFTER THE CRAZY ATTEMPT OF BEN LADEN (WE STOOD IN BETHESDA FIVE DAYS WITHOUT AIRPLAINS 09/11 TO 09/16) THE HOMEOPATIC MD GAVE GABRIEL MACROBIOTIC FOOD, AND THEN WE LEAVES THE ALOPATIC MEDICINE.-
AT LAST, TODAY, THE BLOOD COUNT IS THE SAME WHEN HE IS BAD, BUT A MIRACLE IS GOING ON. HE IS WORKING 4/5 HOURS WITH ME, HE WALKS VERY GOOD, HE HAS A GOOD CLINICAL LEVEL, AND HE IS LESS TIRED THAN BEFORE THE TREATMENT.-
WE WISH TALK ABOUT HOMEOPATIC TREATMENT WITH YOU, IF YOU AGREE.-
AT LAST, BUT NOT THE LEAST, I REQUEST YOUT PARDON BECAUSE I UNDERSTAND ENGLISH BETTER THAN I WRITE IT. PERHAPS YOU DONT UNDERSTAND SOME WORDS OR SENTENCE. IN THE EVENT OF THAT, PLEASE SAID ME.-
IF YOU WANT EMAIL WHIT US ABOUT OUR "SUFFERS" PLEASE ANSWER OUR "LETTER" AS SOON AS POSIBLE.-
DANIEL Y ESTER STRASBERG
Both Marla and Gabriel are still alive today. Daniel sent me this email and I am in the process of emailing Marla for more information.
Tuesday, June 15, 2010
Bone Marrow Donor Status Update
Greg Higgins sent a letter to my Dr. here in Santa Fe about the potential marrow donor. What he said to Caitlyn over the phone is that it is a 10/10 match on paper, but that they need to make sure there is a live person behind the paperwork. I'm assuming this must be the case since they they also have another person who might be a good match too. Now, all the preliminary work-up if this person continues to be suitable will take at least 3 weeks and probably another 2 as well. It is up to my doctor here if she wants me (which she does) to do the immuno-suppressing stuff before (and there is still the ATG issue).
Monday, June 14, 2010
New News
Platelets on Friday after transfusion: 60
Platelets on Monday morning: 27
They found a 10/10 donor. But before you all cheer, check these charts out here:
http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Lrn_about_Disease/Aplastic_Anemia/AA_Tx_Outcomes/index.html
They (ie Seattle) also want me to try the ATG first before BMT.
I feel like I haven't had enough time with alternative methods yet. My doctor is going on vacation for two weeks and she said we could talk about it some more when she returns. She is, predictably, suggesting the allopathic route.
Blood Donation is OUT. They will charge you $375 up front to donate blood directly to me. Apparently the blood bank didn't have it together the last time that you all rushed to donate to me and because I ended up leaving town before I actually got any of your blood, the hospital ate the fees.
Platelets on Monday morning: 27
They found a 10/10 donor. But before you all cheer, check these charts out here:
http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Lrn_about_Disease/Aplastic_Anemia/AA_Tx_Outcomes/index.html
They (ie Seattle) also want me to try the ATG first before BMT.
I feel like I haven't had enough time with alternative methods yet. My doctor is going on vacation for two weeks and she said we could talk about it some more when she returns. She is, predictably, suggesting the allopathic route.
Blood Donation is OUT. They will charge you $375 up front to donate blood directly to me. Apparently the blood bank didn't have it together the last time that you all rushed to donate to me and because I ended up leaving town before I actually got any of your blood, the hospital ate the fees.
Saturday, June 12, 2010
You Don't Have To Like It....
You don't have to like it, but you have to accept it.
Somebody told me that the other day. It struck a chord with me. How often do I reject a thought, concept, even a person because I don't like it, because I refuse to accept it.
There is a part of me that whole-heartedly does not accept this illness and the implications of this illness. There is a part of me that thinks my rejection of this illness is a healthy approach. I got a letter from a lady who said she refused to capitalize chemo and cancer because it would add significance to the concepts. I liked that. I woke up this morning feeling from the depth of my soul "Enough already. It's time to get better."
But I can see it from the other side too....(round and round we go).....that perhaps I should accept this illness and all of it's implications and then surrender myself to the Universe. I can see how the struggle is furtile because whatever happens is going to happen anyway. Ultimately, it's all up to God.
Then I check into my heart....which is often heavy with grief these days....to see if there is even a glimmer of unconditional love. Again and again, I have heard from friends "drop into Love" which sounds fabulous and yet somehow I'm not quite sure how to....when my heart feels so heavy and the tears roll off my eyes so easily. I feel the love of the people surrounding me and I am so grateful for all of your support. But to generate it from the inside....well, that's an entirely different story.
What helps me with my spin? To accept that we are all part of the Divinity. To feel (or even imagine) that Divinity pulsating through me with the breathe. To seek that glimmer of hope and love and feed it more breathe and more life. To surrender to the Divinity. To practice, again and again, until it feels natural. And still, from the depth of my soul, to feel "enough already. illness begone."
Somebody told me that the other day. It struck a chord with me. How often do I reject a thought, concept, even a person because I don't like it, because I refuse to accept it.
There is a part of me that whole-heartedly does not accept this illness and the implications of this illness. There is a part of me that thinks my rejection of this illness is a healthy approach. I got a letter from a lady who said she refused to capitalize chemo and cancer because it would add significance to the concepts. I liked that. I woke up this morning feeling from the depth of my soul "Enough already. It's time to get better."
But I can see it from the other side too....(round and round we go).....that perhaps I should accept this illness and all of it's implications and then surrender myself to the Universe. I can see how the struggle is furtile because whatever happens is going to happen anyway. Ultimately, it's all up to God.
Then I check into my heart....which is often heavy with grief these days....to see if there is even a glimmer of unconditional love. Again and again, I have heard from friends "drop into Love" which sounds fabulous and yet somehow I'm not quite sure how to....when my heart feels so heavy and the tears roll off my eyes so easily. I feel the love of the people surrounding me and I am so grateful for all of your support. But to generate it from the inside....well, that's an entirely different story.
What helps me with my spin? To accept that we are all part of the Divinity. To feel (or even imagine) that Divinity pulsating through me with the breathe. To seek that glimmer of hope and love and feed it more breathe and more life. To surrender to the Divinity. To practice, again and again, until it feels natural. And still, from the depth of my soul, to feel "enough already. illness begone."
Thursday, June 10, 2010
Platelet Count.
Yesterday: 33
Today: 17
Normal Range: 150-400.
Pray for a change in direction of platelets!
Today: 17
Normal Range: 150-400.
Pray for a change in direction of platelets!
The Calendar: What it means and How to Do It
Hello Friends,
At our meeting earlier this week we established an on line help calendar with several slots and roles for each day. The link to the calendar is at the top of the blog entitled Calendar Link and the roles are as follows:
AM: The morning person calls Karen the night before to see what her morning schedule is. She may have an appointment for you to drive her to, or need a grocery shop. laundry or some cleaning. She will let you know how she needs your help. The AM slot should cover from about 8 or 9:00 to about 12 or 1.
PM: The PM and AM persons should touch base at some time during the morning to establish where Karen will be for the AM to PM switch off. The PM person may have to pick Karen up somewhere and then either drop her off or bring her home. The ideal PM slot should cover from about 12 or 1 to about 5pm.
Please note that AM & PM shifts will sometimes not have anything to do and sometimes there may be several drives and/or chores. Karen's schedule often changes very quickly due to doctors appointments and her every changing transfusion schedule. (Wouldn't it be great if they were further apart?)
SUPPER: The supper person is responsible for contacting Karen at some point during the day and finding our what she would like for supper. You might be able to prepare something in advance, or depending on what she's got going on you might be able cook at her place. Washing up after supper is super helpful. This is not a night shift, it's just a supper call.
LEADERS: There should be two leaders each week, starting on Monday and ending on Sunday. The leaders are responsible for making sure that all the calendar slots are filled for the week. If there are slots that need to be filled, the leaders should make calls to fill them. The leaders are also the touch point people should any complications or last minute cancellations come up during the week. They are responsible for making calls to trouble shoot and/or find substitutes.
Sooo ... please visit the calendar link and sign up where you can. Please enter your name, the time you are available, and your phone number. You must double click on the line where you want to write. Sometimes it takes a few seconds. When you are finished, just close the page. It saves automatically.
If you are having any troubles or would like the CONTACT LIST of other helpers emailed to you, please contact me at ebudziak@aol.com.
Thank you for helping. Karen appreciates this beyond words!
Best to all,
Emily
At our meeting earlier this week we established an on line help calendar with several slots and roles for each day. The link to the calendar is at the top of the blog entitled Calendar Link and the roles are as follows:
AM: The morning person calls Karen the night before to see what her morning schedule is. She may have an appointment for you to drive her to, or need a grocery shop. laundry or some cleaning. She will let you know how she needs your help. The AM slot should cover from about 8 or 9:00 to about 12 or 1.
PM: The PM and AM persons should touch base at some time during the morning to establish where Karen will be for the AM to PM switch off. The PM person may have to pick Karen up somewhere and then either drop her off or bring her home. The ideal PM slot should cover from about 12 or 1 to about 5pm.
Please note that AM & PM shifts will sometimes not have anything to do and sometimes there may be several drives and/or chores. Karen's schedule often changes very quickly due to doctors appointments and her every changing transfusion schedule. (Wouldn't it be great if they were further apart?)
SUPPER: The supper person is responsible for contacting Karen at some point during the day and finding our what she would like for supper. You might be able to prepare something in advance, or depending on what she's got going on you might be able cook at her place. Washing up after supper is super helpful. This is not a night shift, it's just a supper call.
LEADERS: There should be two leaders each week, starting on Monday and ending on Sunday. The leaders are responsible for making sure that all the calendar slots are filled for the week. If there are slots that need to be filled, the leaders should make calls to fill them. The leaders are also the touch point people should any complications or last minute cancellations come up during the week. They are responsible for making calls to trouble shoot and/or find substitutes.
Sooo ... please visit the calendar link and sign up where you can. Please enter your name, the time you are available, and your phone number. You must double click on the line where you want to write. Sometimes it takes a few seconds. When you are finished, just close the page. It saves automatically.
If you are having any troubles or would like the CONTACT LIST of other helpers emailed to you, please contact me at ebudziak@aol.com.
Thank you for helping. Karen appreciates this beyond words!
Best to all,
Emily
Wednesday, June 9, 2010
With Each Breathe
With Each Breathe
With Each Prayer
Accept
The birds sing outside my window. The clock ticks by my bedside.
And I realize just how precious time is.....
With Each Prayer
Accept
The birds sing outside my window. The clock ticks by my bedside.
And I realize just how precious time is.....
Tuesday, June 8, 2010
Healthcare Reform
The journey is, and continues to be, challenging. Yesterday I had another platelet transfusion. Luckily this one involved just a few hives during the transfusion and a fever last night.
Once the allopathic doctors help to install in you the fear of death, it is hard to know what to do. Technically, I am supposed to go to the hospital every time my temperature hits 102. But when I went to the hospital for a few days last weekend because my temperature spiked at 104.6, I realized that it often takes me more days to recover from the hospital than it does from whatever else is going on.
Many people have suggested that I learn how to release judgement and anger. This is clearly good advice for most of humanity and I am certainly working on it. But somebody please tell me, how one does not get upset at the following scenario:
I go to the hosipital in the morning (last week) for a platelet transfusion. Predictably I have the "what are you allergic to?" question part of the interview. I give them the list of drugs. I have a terrible reaction to the transfusion and say 4 hours later end up in ER filling out the EXACT same questionaire as I did 4 hours earlier. Again, I list the medications. They decide to admit me. Say another 2 hours later, they try to hook me up to one of the drugs I'm allergic to! Now it should be on my record, right? And I know for certain that it's on the form that I already had to fill out TWICE that day. What would have happened if I weren't paying attention?
So I find myself upset at those events, amongst other experiences that our fine medical establishment subjects the masses to. I exhale the judgement, the anger. Yet somehow I'm still upset. I'm terribly upset that this is the state of our health care system. I'm terribly upset for all the people who aren't paying attention and are trusting the system to take care of them. I know that the people (ie the nurses, doctors, etc) are doing the best that they can under an overwhelmingly ineffective healthcare system and a bureaucratic nightmare.
My nurse Mary, who gave the platelet transfusion gone bad, said that she had a client in the colonscopy department who had gotten some kind of GI problem in Mexico City. The client had gone to the hospital there. When the client returned home, he had a CD with all of the images taken in Mexico and pertinent information. Nurse Mary said "we can't provide our clients with that kind of service." In short, Mexico City has better healthcare than here.
When they say, Healthcare Reform....boy, we should listen.
Once the allopathic doctors help to install in you the fear of death, it is hard to know what to do. Technically, I am supposed to go to the hospital every time my temperature hits 102. But when I went to the hospital for a few days last weekend because my temperature spiked at 104.6, I realized that it often takes me more days to recover from the hospital than it does from whatever else is going on.
Many people have suggested that I learn how to release judgement and anger. This is clearly good advice for most of humanity and I am certainly working on it. But somebody please tell me, how one does not get upset at the following scenario:
I go to the hosipital in the morning (last week) for a platelet transfusion. Predictably I have the "what are you allergic to?" question part of the interview. I give them the list of drugs. I have a terrible reaction to the transfusion and say 4 hours later end up in ER filling out the EXACT same questionaire as I did 4 hours earlier. Again, I list the medications. They decide to admit me. Say another 2 hours later, they try to hook me up to one of the drugs I'm allergic to! Now it should be on my record, right? And I know for certain that it's on the form that I already had to fill out TWICE that day. What would have happened if I weren't paying attention?
So I find myself upset at those events, amongst other experiences that our fine medical establishment subjects the masses to. I exhale the judgement, the anger. Yet somehow I'm still upset. I'm terribly upset that this is the state of our health care system. I'm terribly upset for all the people who aren't paying attention and are trusting the system to take care of them. I know that the people (ie the nurses, doctors, etc) are doing the best that they can under an overwhelmingly ineffective healthcare system and a bureaucratic nightmare.
My nurse Mary, who gave the platelet transfusion gone bad, said that she had a client in the colonscopy department who had gotten some kind of GI problem in Mexico City. The client had gone to the hospital there. When the client returned home, he had a CD with all of the images taken in Mexico and pertinent information. Nurse Mary said "we can't provide our clients with that kind of service." In short, Mexico City has better healthcare than here.
When they say, Healthcare Reform....boy, we should listen.
The REVISED!! FOOD list
Thank you to everyone who will be preparing (or have prepared) food for Karen. As you all know we are what we eat so here are a few newly revised guidelines.
The List has been REVISED based on Muscle Testing with a Chinese professional. Please note the differences.
GOOD FOODS: As much as possible, organic please.
Sweet potatoes and yams
Shitake Mushrooms
Millet and Corn
Amaranth in moderation
Sprouted Ekekial bread (twice a week, don't go crazy here)
Sea Salt and Redomond's Real Salt
Vanilla--Organic Whole Milk Cow Yogurt
Leafy greens in moderation (can be boiled – yes boiled – in salty water with lid off for 1 min. to reduce sulfur, and then prepared however you like): Kale, Dandelion, Collards
Fennel
Peas, Carrots, Corn
Apricot Seed Oil
Pomegranate (not too much)
Organic Grass-Fed lean meat (85%) beef, buffalo, roasted pork
Chicken, Turkey
Fish esp. wild salmon and cod, grouper and haddock
Bone Marrow Soup: Bones should be Broken (with a hammer with bones in a bag?) before boiled for 24 hours to really get the marrow.
Ghee in small amounts
FOODS TO AVOID:
Seaweed
Coconut (sadly)
Anything spicy or heating: onions, garlic, ginger, chile, cinnamon
Dairy products (except a little vanilla yogurt and ghee in small quantities)
Nuts and Seeds
Starches except where noted
Refined flours and gluten (wheat, rye, barley)
Sugar/sweeteners (even honey, maple syrup, etc.)
Vinegar or soy sauce
Oily/fried
All Mushrooms--except Shitake
Tumeric, Curry
The List has been REVISED based on Muscle Testing with a Chinese professional. Please note the differences.
GOOD FOODS: As much as possible, organic please.
Sweet potatoes and yams
Shitake Mushrooms
Millet and Corn
Amaranth in moderation
Sprouted Ekekial bread (twice a week, don't go crazy here)
Sea Salt and Redomond's Real Salt
Vanilla--Organic Whole Milk Cow Yogurt
Leafy greens in moderation (can be boiled – yes boiled – in salty water with lid off for 1 min. to reduce sulfur, and then prepared however you like): Kale, Dandelion, Collards
Fennel
Peas, Carrots, Corn
Apricot Seed Oil
Pomegranate (not too much)
Organic Grass-Fed lean meat (85%) beef, buffalo, roasted pork
Chicken, Turkey
Fish esp. wild salmon and cod, grouper and haddock
Bone Marrow Soup: Bones should be Broken (with a hammer with bones in a bag?) before boiled for 24 hours to really get the marrow.
Ghee in small amounts
FOODS TO AVOID:
Seaweed
Coconut (sadly)
Anything spicy or heating: onions, garlic, ginger, chile, cinnamon
Dairy products (except a little vanilla yogurt and ghee in small quantities)
Nuts and Seeds
Starches except where noted
Refined flours and gluten (wheat, rye, barley)
Sugar/sweeteners (even honey, maple syrup, etc.)
Vinegar or soy sauce
Oily/fried
All Mushrooms--except Shitake
Tumeric, Curry
Sunday, June 6, 2010
SUPPORT MEETING on Monday JUNE 7, 2010
Time: 6:30 pm
Place: Lynn's house - 331 Cadiz Road
Purpose: to compile a list of people who would like to be a part of Karen's care circle
Your help is needed and appreciated! Come to the meeting this Monday night to help us implement a plan that will support Karen in the best way possible for all of us. We are using the Share the Care format (www.sharethecare.org) andthe bigger the support circle, the better. All ways of contributing are possible. Some examples are: meal preparation, organization, paperwork, playing music, driving, fundraising, etc. Any skills are welcome, no matter how big or how small, no obligation necessary at this point. On Monday, we will give a brief description of the program, and then have you fill out a form regarding how you might be able to plug in. This will only take an hour at the most, so please attend. If that is absolutely impossible but you would like to be part of the network, please email Courtney at courtneykerr@hailmail.net and she will send you the form.
Place: Lynn's house - 331 Cadiz Road
Purpose: to compile a list of people who would like to be a part of Karen's care circle
Your help is needed and appreciated! Come to the meeting this Monday night to help us implement a plan that will support Karen in the best way possible for all of us. We are using the Share the Care format (www.sharethecare.org) andthe bigger the support circle, the better. All ways of contributing are possible. Some examples are: meal preparation, organization, paperwork, playing music, driving, fundraising, etc. Any skills are welcome, no matter how big or how small, no obligation necessary at this point. On Monday, we will give a brief description of the program, and then have you fill out a form regarding how you might be able to plug in. This will only take an hour at the most, so please attend. If that is absolutely impossible but you would like to be part of the network, please email Courtney at courtneykerr@hailmail.net and she will send you the form.
Looking forward to seeing all of you .
Saturday, June 5, 2010
Sprung!
I GET TO GO TO MY NEW HOME THIS MORNING! RELEASED FROM HOSPITAL-PRISON! I KNOW THEY MEAN WELL BUT A LUXURY STAY IT IS NOT! THE DOCTOR AND I HAVE A PLAN TO STREAMLINE SOME OF OUR PROCEDURES FOR FUTURE REFERENCE. IT IS A VERY HAPPY DAY INDEED!!!
Friday, June 4, 2010
Admitted
FOR THE NEXT 48 HRS AT ST VINCENTS HOSPITAL. I HAD REACTION TO MY PLATLET TRANSFUSION TODAY. FEVER SPIKED AT 104.6. NOW THEY TEST ME FOR EVERYTHING. NOT MUCH FUN IMI'M AFRAID BUT I DO LIKE THE ABILITY TO BUZZ SOMEONE AND THEY SHOW UP TO DO WHAT UD LIKE...EXCEPT OF COURSE RELEASE ME!
Thursday, June 3, 2010
What You Can Do To Help
In April, I was diagnosed with very severe Aplastic Anemia, a life threatening disease. Aplastic anemia means that my bone marrow has stopped producing red and white blood cells and platelets. I currently require blood and/or platelet transfusions every week and I will be getting these transfusions at St. Vincent's hospital regularly. I am not contagious in any way. That said, while I have low energy, I am able to drive and function as a more or less normal human being. According to the Western experts, I need a bone marrow transplant in order to fully recover.
1. Become a Bone Marrow Donor
Information at http://www.
In order to become a Donor, your blood type and tissue antigens must be compatible with the recipient, and you must be healthy enough to withstand the donation process.
1. You must be at least 18 but not older than 60.
2. My blood type is A Rh positive or A+. If you would like to donate to me specifically, you must have Type A or Type O blood.
Option 1 (http://www.bonemarrowtest.
For those of you, who would like to donate only to me, the following information is required:
Seattle Cancer Care Alliance
825 Eastlake Ave E
PO Box 19023
Seattle WA 98109-1023
My name is Karen Mauthe. birthday: 11/16/1972
My SCCA doctor until June 6: Dr. Effie Petersdorf.
My SCCA doctor after June 6 until July: Dr. Doney
My bone marrow coordinator or Certified Search specilist Unrelated Donors: Greg Higgins
Greg's Info: Tele 800.804.8824
Fax 206.288.1011
email: ghiggins@seattlecca.org
Seattle Cancer Care Alliance
825 Eastlake Ave E
PO Box 19023
Seattle WA 98109-1023
My name is Karen Mauthe. birthday: 11/16/1972
My SCCA doctor until June 6: Dr. Effie Petersdorf.
My SCCA doctor after June 6 until July: Dr. Doney
My bone marrow coordinator or Certified Search specilist Unrelated Donors: Greg Higgins
Greg's Info: Tele 800.804.8824
Fax 206.288.1011
email: ghiggins@seattlecca.org
Option 2 has some cost which depends on how well http://www.marrow.org/
Both organizations have a plethora of information on Bone Marrow Donorship.
2. Help me with Daily Existence
For people who are in my area, I need help with the daily chores that most of us take for granted: grocery shopping, organic nutritious meals in keeping with my dietary challenges, cleaning. I need to conserve what energy I have for healing. If you have special healing powers that you'd like to offer, please let me know. My friends and family have been very helpful, but it is a lot for anyone to take on. I have 0.0 immunity so if you have even the slightest sniffle, please do not come anywhere near me.
3. If you have type A+ blood AND live in Santa fe, please donate blood and/or platelets.
I have to get this organized through my doctors office so give me one more minute to figure this out. You can donate blood and/or platelets directly to me, but there is a form that I have to get my doctors to sign and fax over to the Blood Bank. I will ask my doctor today when I see her. As far as I know, blood cannot travel across state lines so you have to be local to NM to do this option.
4. Make a Financial Contribution
I am unable to work and will most likely be unable to work for quite some time. Not only do I have outrageous medical expenses (even though I have health insurance), but daily living expenses as well. The doctors estimate that from the time that they find a donor, it will take 4-9 months for the transplant process to be completed.
5. Pray
I believe in the power of prayer and positive thinking. I accept this challenge as an opportunity to grow and change and have every intention of making it through this strange adventure that I've been given.
You may email me at fieldofcosmos@gmail.com or ring me at 505.955.9644. Bless you all.
Love,
Karen
Low Platelets and A Very Important Question
My head begins to swim, my vision blurs and I find myself crying for random events. They technically should have given me a transfusion today, but alas they have to get the platelets from Albuquerque so I have to wait until morning. Apparently, nobody at the hospital has any kind of control over the situation and the fact that I could die in the meantime (unlikely unless I hit my head, then I might internally bleed) seems totally unimportant to them. Really, this should be investigated by someone with a propensity for news and injustice.
My housing situation is still being debated by a core group of people, as I speak. The place I looked at today is available fully furnished, and totally lovely albeit a bit isolated, until mid-August. Are people willing to drive 12 minutes north of Wild Oats to be a part of my support group....say if it's your day to help me or bring me dinner or if I need help in the middle of the night (rare, but it does happen) whatever? I'll await your responses.
My housing situation is still being debated by a core group of people, as I speak. The place I looked at today is available fully furnished, and totally lovely albeit a bit isolated, until mid-August. Are people willing to drive 12 minutes north of Wild Oats to be a part of my support group....say if it's your day to help me or bring me dinner or if I need help in the middle of the night (rare, but it does happen) whatever? I'll await your responses.
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